Monday, 10 August 2015

The day we've been waiting for.....

Today is day 3 of no oxygen.....yep, that's right, little man is in air with no respiratory assistance for the first time ever!! The download on Friday night was just perfect, so Jensen has had his prongs and tubing removed since then, and assuming he is still happy in air for another download sometime this week, the oxygen tanks will be collected and removed for good. Yay!!!! We've all been waiting for this day for so long, we are so proud of our little man, and he seems quite happy with himself too. Thinking back to when he was just initiating breaths, and having the ventilator finish them for him, to see him now doing it all on his own is an amazing achievement in such a short time. We were initially looking at being on oxygen for a lot longer, so our little super star has just amazed everyone he knows once again.

Now that we can see our handsome boy's face unobstructed for the first time ever, we've been showering his bare cheeks with kisses. We've danced around the house in twirls without tangles, gone out on to the balcony without restriction, passed him to each other without getting caught in tubing, and gone for a walk minus the 5kg backpack. It only took us minutes to leave the house, and we were able to take turns pushing the pram, heck, today we even enjoyed a coffee at a cafĂ© with outdoor heating...something we've had to avoid having a flammable tank on our back....it's these little things of everyday life taken for granted, that are our little treasures. We don't have inquisitive stares any longer, we just blend. Not that I have ever been one to blend, but in this instance, it's been a long term wish.

On top of this good news, Jensen also reached the 4kg mark. Actually he's had quite the growth spurt, growing 6 cm in a week! This means he is less of a worry to the doctors, and much more robust. It also means that we can move on to demand feeding again, and let the little man sleep for longer stints (and mummy and daddy). We still have to keep track of his supplements and meds, but have now scheduled them to feeds rather than a time.

I think that's enough exciting news for one post, so will keep you updated with our little star's progress as the weeks go by.




1 comment:

  1. Such a brave, strong little man. Lovely photos too. Thanks for sharing. Loads of hugs and love to the three of you from us xxxxxx

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