Tucker time

Yay! All clear for feeds. Started at one ml four hourly for 24 hours and will see how the little fella tolerates it. Also all clear to stop antibiotics in the morning, but due to the cannula in his arm not working it had to be removed, so antibiotics were stopped a little earlier than first thought.

The little man had a little wash down today. He had water squeezed all over him like lemon juice over a piece of fish, and looked much fresher afterwards. He seemed to enjoy the whole experience and fell fast asleep as soon as we were done. Daddy did a good job, but mummy was a bit afraid, so let the nurse finish him off.

Grandpa James has had a very nervous little touch of Jensen's head, and grandma Jackson has had a couple of highly anticipated touches today. A little hand hold was even possible due to the removal of the cannula. Grandpa Jackson is still waiting for his little cough to subside before his turn.

Overnight Jensen did a little poo which is a good sign things are all up and running again. Today we are increasing feeds to 3.3ml four hourly, and should that go well the surgeons and doctors are looking at an ambulance ride back to RNS sometime tomorrow. Yeehah! We can't wait to get back 'home'. This has been the most exhausting week of the last ten. Here the days are long, we can't sit beside him all day, we can't nip home for lunch or dinner, there's nothing around here to do to break up the time, except for eat from the vending machine, the parent lounge is small and overcrowded and there are minimal other rest areas...the drive here and home is long, and this place is full of ferals. The doctors and nurses are fantastic and lovely, but we are ready to go back home to our own medical team. Mummy has even given them a call to pre-empt the situation and to make sure there is a bed available for him, and thankfully there is.

Little man is not happy with the tube placement again today. He had a new one fitted a day or two ago, and he has started having braddys again today. All his stats are perfect...or even a little too good, so the problem is merely mechanical again, and Jensen is so particular with the darn thing. They were thinking of putting him back on CPAP but I was worried they wouldn't transfer him home on it. They said they could but he'd just have to prove himself. Anyhow, they've ended up leaving him on the ventilator.

We bumped into one of Jensen's neighbours from RNS today. He's here to have the same operation as Jensen. Hopefully our words and experience have lessened their nerves and worry a little. We think they sent him here because of Jensen. His hernia he'd only had for three days, and on the third day doctors had some trouble reducing it, so his bags were packed and off he went to Westmead. I believe Jensen and his little journey so far will continue to be an example for others to come.

He just looks such a happy little boy now. He's been smiling a lot, even when he's sleeping. Poor little thing must have been uncomfortable and in a bit of pain previously, but now looks quite content.

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